eprintid: 723
rev_number: 1
eprint_status: archive
userid: 1
dir: disk0/00/00/07/23
datestamp: 2020-04-23 05:19:44
lastmod: 2020-04-23 05:19:44
status_changed: 2020-04-23 05:19:44
type: thesis
metadata_visibility: show
creators_name: Spruijt, E.R.
title: Research ethics in register-based population studies: How do register researchers approach the ethics of working with human data?
ispublished: pub
full_text_status: public
abstract: The objectives of this study are twofold: to gain insight into the normative framework set out for academic researchers working in the Dutch context, and to explore how register researchers working in the Netherlands approach the research ethics of working with human data. A qualitative mixed method approach was employed, in which the findings of a content analysis of academic research ethics guidelines, and a thematic analysis of semi-structured in-depth interviews with register researchers were combined. The findings indicate that the norms set out in academic guidelines generally provide a suitable framework to understand researchers’ perceptions and attitudes towards research ethics, but also reveal how researchers practice research ethics through additional strategies. The developed inductive conceptual model forms a solid base for future research, as it provides valuable insights on the practices register researchers working in the Netherlands apply to protect the interests of those included in register datasets.
date: 2017
date_type: published
thesis_type: master
degree_programme: POPST
tutors_name: Bailey, dr. A.
keywords_local: Netherlands
keywords_local: competence
keywords_local: privacy
keywords_local: guideline
keywords_local: research ethics
keywords_local: register
keywords_local: population
keywords_local: mixed method
language_iso: en
titleorder: Research ethics in register-based population studies: How do register researchers approach the ethics of working with human data?
dbi: 599c3f87587df
imported_item: yes
date_of_import: 2020-04-22
imported_from: http://scripties.frw.eldoc.ub.rug.nl/root/ma/PopSt/2017/erspruijt/
import_source_file: theses-frw-20200422132455-599c3f87587df.xml
date_issued: 2017-01-01
citation:   Spruijt, E.R.  (2017) Research ethics in register-based population studies: How do register researchers approach the ethics of working with human data?  Master thesis.   
document_url: https://frw.studenttheses.ub.rug.nl/723/1/Master_Thesis_-_E.R._Spruijt.pdf